I think everyone who has a story similar to ours starts out the same way. Our day, which happened to be our eight year anniversary, started out as any other day. We were going to celebrate our anniversary by going out to lunch, as we had our eight-week baby boy, Morgan with us, and we were going to drop our two older girls, Molly and Maggie at a sitter for a few hours. Well, our anniversary didn’t turn out how we had envisioned; it was probably the most difficult to imagine scenario for us or for any parent. We ended a very long, scary and emotional day at Phoenix Children’s Hospital with our two-year old, Maggie, admitted to the Hematology/Oncology Floor.
And so it started. Two days later, on April 10, 2008, Maggie was diagnosed with leukemia. A few days later, after even more tests, we were given the diagnosis of CML, Chronic Myelogenous Leukemia. This type of leukemia is common among older adults, usually males 60 and older, and very rare in children. In fact, at the time, Maggie was the youngest person diagnosed with CML from all cases registered through the Children’s Oncology Group (COG).
Maggie’s journey in April 2008 went from diagnosis, remission (July 2008), blast crisis (3rd phase of three; October 2008), radiation and pre-transplant workup, unrelated allogeneic bone marrow transplant (November 2008), and then remission (November 2009). Her journey continues today, as you can read about in her journal on www.caringbridge/visit/maggiesiegel.
Thank you for your continued prayers, donations, support and words of encouragement.
Please stop by these other websites to learn more about Maggie’s disease and other forms of leukemia. Becoming a bone marrow donor is quick and can be life-changing. It changed Maggie’s life and ours – forever.
www.lls.org www.marrow.org www.makeawish.org www.supersibs.org www.hopekids.org www.bmtinfonet.org www.nbmtlink.org
If you would like to continue to follow Maggie and our story, please log into www.caringbridge.org/visit/maggiesiegel for regular updates, photos and fundraising opportunities. Thank you for your ongoing support.